PHILADELPHIA, PA — The Love for Liam Foundation announced the Fourth Annual Liam Johnson Memorial Golf Outing & Benefit Dinner will be held on May 2, 2025, at Northampton Valley Country Club in Richboro, PA. The event aims to raise awareness for pediatric epilepsy and support groundbreaking research through the Epilepsy Neurogenetics Initiative (ENGIN) at Children’s Hospital of Philadelphia (CHOP).
Since its inception in 2022, the annual memorial event formed in honor of Liam Johnson has generated more than $400,000 for ENGIN programs. Funds support advanced genetic testing, tailored treatment plans, and innovative research efforts in pediatric epilepsy, an area where ENGIN is recognized as a global leader.
The outing and dinner unite golfers, local businesses, supporters, and volunteers in an evening of advocacy, fundraising, and celebration. Event activities include raffles, auctions, food, and live entertainment, all held in memory of Liam, who was diagnosed with early infantile epileptic encephalopathy.
“Our sweet boy, William Herschel Johnson, will never cease to amaze us. Each year he has brought together golfers, dinner guests, volunteers, and the incredible team at CHOP to advocate, raise awareness, and honor epilepsy warriors,” said Heather and Kyle Johnson, Liam’s parents and cofounders of the Love for Liam Foundation. “Our favorite stat is that donations have been collected from over 600 different individuals or companies this year. This means that over 600 people and organizations have learned more about epilepsy, the devastating impact it can have, and the urgent need for precision medicine. We are at the forefront of transformational change, and we are so grateful to have so many on this journey with us.”
With the continued success of past years’ events, the foundation remains a dedicated advocate for pediatric epilepsy patients, contributing essential funding toward transforming care. The Fourth Annual Memorial Event reflects growing support for the mission, ensuring that more families benefit from access to advanced diagnostics and treatment breakthroughs at CHOP.
The Love for Liam Foundation and its community partners aim to surpass prior fundraising milestones and expand awareness of pediatric epilepsy, reaffirming their commitment to making a lasting impact in Liam’s memory.
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